We lost our first baby. He was born at 35 weeks 2 days pregnant, it was both shocking and devastating, to say the very least.
The hospital social worker warned us that internet groups could be dark places and to be wary of them. Armed with a handful of bereavement pamphlets, a memory box and this information, we left the hospital.
Still reeling, I couldn’t handle the obnoxiously happy weekly pregnancy updates infiltrating my inbox. I tentatively logged on to the website to delete my account. My vision made blurry from constant tear swiping, I navigated my way to the “delete account” page — a nearly impossible feat. The site, like most sites, claimed to be very genuinely sad to see me go. They begged to know why I would ever want to leave their very informative and useful site, and provided a multiple choice click option. And for once in my life, I was grateful to have to explain my reasons to a computer, because there it was beside one of the tiny check boxes: miscarriage/baby loss. The site expressed its sincerest condolences and listed several forums I might find comfort in.
But wait, the social worker had warned me about these dark corners of the internet, where grieving people wallow in their sorrows amongst the internet cobwebs — often never heard from again.
Too late — before I knew it, I was the newest member in all three of the loss groups the site had recommended for me.
I have “real life” friends, great ones, family too, they were so so good to us after our loss, but my soul longed for a kindred connection with other souls, also still reeling from the overwhelming trauma, that is baby loss.
I spent hours poring over every single post. I made posts. I commented on posts. I marked comments with a tiny heart, just to let someone, somewhere, know they had been heard. It was a safe space where I could say whatever sad or disturbing thing I wanted and I was completely understood. Some nights, long after pre-loss me would have been sleeping, I lay in bed, clinging to my phone, the screen illuminated the darkness, as I refreshed my feed, over and over again. I didn’t want to miss anything.
There was a specific group of us, that had all lost babies within a few months of each other (three of us had babies born on the same day — including our son). We frequently commented on each others posts and passed private messages back and forth. Then one of them made a Facebook group. I was hesitant to lose my anonymity by linking these two worlds, matching screen names with real names, but I’m so glad I did.
We celebrate with each other. We cry with each other. We talk each other through some of the scariest moments of our lives. We lift each other up. We talk each other down. We’ve watched each other’s families grow both in size and in experiences. But most importantly, we remember together.
When the entire world feels like it is entirely too much, we make jokes about buying a castle together, or a tropical island and escaping it all — quite possibly forever.
I was so lucky to meet one of my friends, after almost three years of chatting online. She generously invited my family to stay with hers in her home in the Dominican Republic. It was awkward for exactly one minute before we dove deep into conversation, right where our last chat had left off. We visited her sweet baby in the cemetery and celebrated her rainbow daughter’s first birthday, alongside her family and friends. We holidayed together and watched both of our daughters playing in the sand under the palm trees. We marvelled at this exhaustingly beautiful stage of life, while reminiscing about our journey here. How lucky we were to have found each other.
I casually talk about my Internet friends and I’m often asked how I met them, because they are scattered about the United States, another in Canada and my dear friend in the Dominican Republic. “Oh,” people always respond, flatly, and I quickly feel the need to legitimize our friendship, but maybe it’s not something you fully understand, until you have internet friends, who regularly check in on you.
My soul found what it needed there, in that dark little corner of the internet, I found them, or maybe they found me, all of us a little broken, all of us in need of an understanding ear, all of us connected by a life-altering, world up-ending event.
Seven years, several miscarriages, many heart breaks, personal and family traumas, countless laughs and 27 rainbow babies (another on its way), we all remain friends.
